Family caregiving in chronic illness

Detalhes bibliográficos
Autor(a) principal: Almeida, Karla Beatriz Barros de
Data de Publicação: 2014
Outros Autores: Araújo, Laura Filomena Santos de, Bellato, Roseney
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Reme (Online)
Texto Completo: https://periodicos.ufmg.br/index.php/reme/article/view/50144
Resumo: This study aimed at understanding family caregiving for a young person with chronic illness since childhood. He had a kidney disease and cancer. The researchers used a comprehensive approach as situational analysis from his life history. During fieldwork, researchers carried out in-depth interviews and direct observation aiming at apprehending elements they had heard, seen and experienced. These elements were then registered in a field diary. After vertical and horizontal reading, the corpus of analysis was identified and different aspects that permeated the narrative were highlighted. A genogram of the individual and his family was built. The individual's chronic condition changed family life: they were compelled to look after him in a synergy of actions and constant motion that provided some support. New routines were created and other ways of overcoming the new obstacles were developed.
id UFMG-27_a7d94a5b5d803a2a972de094f027df99
oai_identifier_str oai:periodicos.ufmg.br:article/50144
network_acronym_str UFMG-27
network_name_str Reme (Online)
repository_id_str
spelling Family caregiving in chronic illnessCuidados familiares en la experiencia de enfermedad crónica de un jovenCuidado familiar na experiência do adoecimento crônico de um jovem: a young person's experienceRelaciones FamiliaresAcontecimientos que cambian la vidaEnfermedad CrónicaCuidadoresRelações FamiliaresAcontecimentos que mudam a vidaDoença CrônicaCuidadoresFamily RelationsLife Change EventsChronic DiseaseCaregiversThis study aimed at understanding family caregiving for a young person with chronic illness since childhood. He had a kidney disease and cancer. The researchers used a comprehensive approach as situational analysis from his life history. During fieldwork, researchers carried out in-depth interviews and direct observation aiming at apprehending elements they had heard, seen and experienced. These elements were then registered in a field diary. After vertical and horizontal reading, the corpus of analysis was identified and different aspects that permeated the narrative were highlighted. A genogram of the individual and his family was built. The individual's chronic condition changed family life: they were compelled to look after him in a synergy of actions and constant motion that provided some support. New routines were created and other ways of overcoming the new obstacles were developed.El presente estudio tuvo como objetivo entender cómo se forma el cuidado familiar en la experiencia de enfermedad crónica de un joven con cáncer y problemas renales desde la niñez y en la adolescencia. Se trata de una investigación comprensiva proyectada como análisis de la situación desde la historia de vida. Durante el trabajo de campo se utilizaron la entrevista en profundidad y la observación para obtener elementos oídos, vistos y vividos, registrados en el diario de campo. Luego, se fue formando el corpus de análisis que, después de su lectura vertical y horizontal, mostró diferentes aspectos que impregnaban la narración. Se elaboró el genograma del joven y de su familia. A medida que los daños de la enfermedad crónica del joven repercutían en la vida de los familiares, éstos eran obligados a cuidarlo, en una sinergia de acciones y constante movimiento, brindándole una especie de apoyo. Hubo otras situaciones en la experiencia de enfermedad del joven y su familia y ante cada nueva condición impuesta, ellos fueron buscando nuevos medios de superación.Objetivou-se compreender como se moldou o cuidado familiar na experiência de adoecimento crônico que perpassou a infância e a adolescência de jovem acometido por doença renal e câncer. Estudo de abordagem compreensiva, moldado como análise situacional a partir da história de vida. No trabalho de campo, empregou-se a entrevista em profundidade e observação para apreensão dos elementos ouvidos, vistos e experienciados, registrados em diário de campo. A partir deste último, moldou-se o corpus de análise que, após leituras vertical e horizontal, evidenciou aspectos que permeiam as diferentes narrativas. Do corpus, desenhou-se o genograma do jovem e família. Conforme os afetamentos do adoecimento crônico do jovem repercutiam na vida dos familiares, estes eram compelidos a cuidar dele, numa sinergia de atuações e constante movimento, oferecendo-lhe certa sustentação. Desenvolveram-se outras normalidades na vivência do adoecimento pelo jovem e família e a cada nova condição imposta, novos meios de superação foram por eles desenvolvidos.Universidade Federal de Minas Gerais2014-09-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/plainapplication/pdfapplication/pdfhttps://periodicos.ufmg.br/index.php/reme/article/view/5014410.5935/1415-2762.20140053REME-Revista Mineira de Enfermagem; Vol. 18 No. 3 (2014)REME-Revista Mineira de Enfermagem; Vol. 18 Núm. 3 (2014)REME-Revista Mineira de Enfermagem; v. 18 n. 3 (2014)2316-93891415-2762reponame:Reme (Online)instname:Universidade Federal de Minas Gerais (UFMG)instacron:UFMGporenghttps://periodicos.ufmg.br/index.php/reme/article/view/50144/41345https://periodicos.ufmg.br/index.php/reme/article/view/50144/41346https://periodicos.ufmg.br/index.php/reme/article/view/50144/41347Copyright (c) 2014 Reme: Revista Mineira de Enfermageminfo:eu-repo/semantics/openAccessAlmeida, Karla Beatriz Barros deAraújo, Laura Filomena Santos deBellato, Roseney2024-01-24T12:41:22Zoai:periodicos.ufmg.br:article/50144Revistaremeufmg@gmail.comPUBhttps://periodicos.ufmg.br/index.php/reme/oairemeufmg@gmail.com2316-93891415-2762opendoar:2024-01-24T12:41:22Reme (Online) - Universidade Federal de Minas Gerais (UFMG)false
dc.title.none.fl_str_mv Family caregiving in chronic illness
Cuidados familiares en la experiencia de enfermedad crónica de un joven
Cuidado familiar na experiência do adoecimento crônico de um jovem: a young person's experience
title Family caregiving in chronic illness
spellingShingle Family caregiving in chronic illness
Almeida, Karla Beatriz Barros de
Relaciones Familiares
Acontecimientos que cambian la vida
Enfermedad Crónica
Cuidadores
Relações Familiares
Acontecimentos que mudam a vida
Doença Crônica
Cuidadores
Family Relations
Life Change Events
Chronic Disease
Caregivers
title_short Family caregiving in chronic illness
title_full Family caregiving in chronic illness
title_fullStr Family caregiving in chronic illness
title_full_unstemmed Family caregiving in chronic illness
title_sort Family caregiving in chronic illness
author Almeida, Karla Beatriz Barros de
author_facet Almeida, Karla Beatriz Barros de
Araújo, Laura Filomena Santos de
Bellato, Roseney
author_role author
author2 Araújo, Laura Filomena Santos de
Bellato, Roseney
author2_role author
author
dc.contributor.author.fl_str_mv Almeida, Karla Beatriz Barros de
Araújo, Laura Filomena Santos de
Bellato, Roseney
dc.subject.por.fl_str_mv Relaciones Familiares
Acontecimientos que cambian la vida
Enfermedad Crónica
Cuidadores
Relações Familiares
Acontecimentos que mudam a vida
Doença Crônica
Cuidadores
Family Relations
Life Change Events
Chronic Disease
Caregivers
topic Relaciones Familiares
Acontecimientos que cambian la vida
Enfermedad Crónica
Cuidadores
Relações Familiares
Acontecimentos que mudam a vida
Doença Crônica
Cuidadores
Family Relations
Life Change Events
Chronic Disease
Caregivers
description This study aimed at understanding family caregiving for a young person with chronic illness since childhood. He had a kidney disease and cancer. The researchers used a comprehensive approach as situational analysis from his life history. During fieldwork, researchers carried out in-depth interviews and direct observation aiming at apprehending elements they had heard, seen and experienced. These elements were then registered in a field diary. After vertical and horizontal reading, the corpus of analysis was identified and different aspects that permeated the narrative were highlighted. A genogram of the individual and his family was built. The individual's chronic condition changed family life: they were compelled to look after him in a synergy of actions and constant motion that provided some support. New routines were created and other ways of overcoming the new obstacles were developed.
publishDate 2014
dc.date.none.fl_str_mv 2014-09-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.ufmg.br/index.php/reme/article/view/50144
10.5935/1415-2762.20140053
url https://periodicos.ufmg.br/index.php/reme/article/view/50144
identifier_str_mv 10.5935/1415-2762.20140053
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://periodicos.ufmg.br/index.php/reme/article/view/50144/41345
https://periodicos.ufmg.br/index.php/reme/article/view/50144/41346
https://periodicos.ufmg.br/index.php/reme/article/view/50144/41347
dc.rights.driver.fl_str_mv Copyright (c) 2014 Reme: Revista Mineira de Enfermagem
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2014 Reme: Revista Mineira de Enfermagem
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/plain
application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade Federal de Minas Gerais
publisher.none.fl_str_mv Universidade Federal de Minas Gerais
dc.source.none.fl_str_mv REME-Revista Mineira de Enfermagem; Vol. 18 No. 3 (2014)
REME-Revista Mineira de Enfermagem; Vol. 18 Núm. 3 (2014)
REME-Revista Mineira de Enfermagem; v. 18 n. 3 (2014)
2316-9389
1415-2762
reponame:Reme (Online)
instname:Universidade Federal de Minas Gerais (UFMG)
instacron:UFMG
instname_str Universidade Federal de Minas Gerais (UFMG)
instacron_str UFMG
institution UFMG
reponame_str Reme (Online)
collection Reme (Online)
repository.name.fl_str_mv Reme (Online) - Universidade Federal de Minas Gerais (UFMG)
repository.mail.fl_str_mv remeufmg@gmail.com
_version_ 1797041906043060224