Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Educação Especial (UFSM) |
Texto Completo: | http://periodicos.ufsm.br/educacaoespecial/article/view/66743 |
Resumo: | It becomes imperative for services that assist the family of people with disabilities to understand their family support needs. The objective of this work was to analyze the need of support directed to families of children and adolescents with disabilities in a specialized rehabilitation center in thest ate of Alagoas. This is a cross-sectional, descriptive and comparative study, with a quantitative approach. Forty user families were recruited, aged between 0 and 17 years, 11 months and 29 days. For data collection, the Family Needs Assessment Scale Protocol (ANF) was used. The data were tabulated in an electronic spreadsheet and analyzed statistically using Software R version 3.6.1. Among the participating family members, it was observed that the figure of the mother in care was recurrent, with 92.5% being primary caregivers. Most families needed intermediate support in the performance of basic tasks. Regarding the type of support that would be most useful for families, the results mentioned informational support as the one that would best meet the family's needs. Regarding the classification by factor of the ANF, it was found that the largest number of items indicating high need is found among the variables family life, free time and acquisition and management of products and services, as well as very high need in the area of education . The data demonstrate the need to propose strategies aimed at developing support networks to support the families of children and adolescents with disabilities, in solving their needs. |
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Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in AlagoasNecesidades de apoyo de Familias de niños y adolescentes con discapacidad en un centro especializado de rehabilitación en AlagoasNecessidades de Apoio de Famílias de crianças e adolescentes com deficiência de um Centro Especializado em Reabilitação de AlagoasFamíliaNecessidade de apoioDeficiênciaCriança e adolescenteFamilyNeed supportDeficiencyChild and teenagerFamiliaNecesidad de apoyoDeficienciaNiño y adolescenteIt becomes imperative for services that assist the family of people with disabilities to understand their family support needs. The objective of this work was to analyze the need of support directed to families of children and adolescents with disabilities in a specialized rehabilitation center in thest ate of Alagoas. This is a cross-sectional, descriptive and comparative study, with a quantitative approach. Forty user families were recruited, aged between 0 and 17 years, 11 months and 29 days. For data collection, the Family Needs Assessment Scale Protocol (ANF) was used. The data were tabulated in an electronic spreadsheet and analyzed statistically using Software R version 3.6.1. Among the participating family members, it was observed that the figure of the mother in care was recurrent, with 92.5% being primary caregivers. Most families needed intermediate support in the performance of basic tasks. Regarding the type of support that would be most useful for families, the results mentioned informational support as the one that would best meet the family's needs. Regarding the classification by factor of the ANF, it was found that the largest number of items indicating high need is found among the variables family life, free time and acquisition and management of products and services, as well as very high need in the area of education . The data demonstrate the need to propose strategies aimed at developing support networks to support the families of children and adolescents with disabilities, in solving their needs.Se vuelve imperativo que los servicios que ayuden a la familia de las personas con discapacidades a comprender sus necesidades de apoyo familiar. El objetivo de este trabajo fue analizar las necesidades de apoyo dirigidas a familias de niños y adolescentes con discapacidad en un centro de rehabilitación especializado en el estado de Alagoas. Se trata de un estudio transversal, descriptivo y comparativo, con enfoque cuantitativo. Se reclutaron cuarenta familias usuarias, con edades comprendidas entre 0 y 17 años, 11 meses y 29 días. Para la recolección de datos se utilizó el Protocolo de Escala de Evaluación de Necesidades Familiares (ANF). Los datos se tabularon en una hoja de cálculo electrónica y se analizaron estadísticamente con el software R versión 3.6.1. Entre los familiares participantes, se observó que la figura de la madre a cargo fue recurrente, siendo el 92,5% cuidadoras primarias. La mayoría de las familias necesitaban un apoyo intermedio en el desempeño de tareas básicas. En cuanto al tipo de apoyo que sería de mayor utilidad para las familias, los resultados mencionaron el apoyo informativo como el que mejor respondería a las necesidades de la familia. En cuanto a la clasificación por factores de la ANF, se encontró que el mayor número de ítems indicativos de alta necesidad se encuentra entre las variables vida familiar, tiempo libre y adquisición y gestión de productos y servicios, así como muy alta necesidad en el área de educación. . Los datos demuestran la necesidad de proponer estrategias encaminadas a desarrollar redes de apoyo para apoyar a las familias de niños, niñas y adolescentes con discapacidad, en la solución de sus necesidades.Torna-se imperativo para os serviços que prestam assistência a família de pessoas com deficiência compreender as suas necessidades de apoio familiar. O objetivo deste trabalho foi analisar as necessidades de apoio dirigido a famílias de crianças e adolescentes com deficiência de um centro especializado em reabilitação do estado de Alagoas. Trata-se de um estudo transversal, descritivo, com abordagem quantitativa. Foram recrutadas 40 famílias de usuários com idade entre 0 e 17 anos, 11 meses e 29 dias. Para a coleta de dados foi utilizado o Protocolo da Escala de Avaliação das Necessidades da Família (ANF). Os dados foram tabulados em planilha eletrônica e analisados estatisticamente utilizando o Software R versão 3.6.1. Dentre os familiares participantes observou-se que a figura da mãe no cuidado era recorrente, sendo 92,5% cuidadores principais. A maioria das famílias apresentou necessidade de apoio intermediário no desempenho de tarefas básicas. Sobre o tipo de apoio que seria mais útil para as famílias os resultados mencionaram o apoio informativo como o que mais atenderia as necessidades da família. Em relação à classificação por fator da ANF, obteve-se que o maior número de itens indicando alta necessidade encontra-se entre a variável vida familiar, tempo livre e aquisição e gestão de produtos e serviços, tal como necessidade muito alta na área de educação. Os dados demonstram a necessidade de proposição de estratégias voltadas para desenvolvimento de redes de suporte para apoio as famílias das crianças e adolescentes com deficiência, na resolutividade de suas necessidades.Universidade Federal de Santa Maria2023-10-05info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/htmlhttp://periodicos.ufsm.br/educacaoespecial/article/view/6674310.5902/1984686X66743Special Education Magazine; Vol. 36 No. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28Revista de Educación Especial; Vol. 36 Núm. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28Revista Educação Especial; v. 36 n. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-281984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/66743/61900http://periodicos.ufsm.br/educacaoespecial/article/view/66743/61903Copyright (c) 2023 Revista Educação Especialhttps://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessSilva, Emilly Carla Lima daNunes, Ana CéliaSilva, Flavia Calheiros daSantos, Emanuele Mariano de SouzaBarba, Patricia Carla de Souza Della2023-12-11T13:02:51Zoai:ojs.pkp.sfu.ca:article/66743Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2023-12-11T13:02:51Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas Necesidades de apoyo de Familias de niños y adolescentes con discapacidad en un centro especializado de rehabilitación en Alagoas Necessidades de Apoio de Famílias de crianças e adolescentes com deficiência de um Centro Especializado em Reabilitação de Alagoas |
title |
Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas |
spellingShingle |
Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas Silva, Emilly Carla Lima da Família Necessidade de apoio Deficiência Criança e adolescente Family Need support Deficiency Child and teenager Familia Necesidad de apoyo Deficiencia Niño y adolescente |
title_short |
Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas |
title_full |
Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas |
title_fullStr |
Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas |
title_full_unstemmed |
Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas |
title_sort |
Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas |
author |
Silva, Emilly Carla Lima da |
author_facet |
Silva, Emilly Carla Lima da Nunes, Ana Célia Silva, Flavia Calheiros da Santos, Emanuele Mariano de Souza Barba, Patricia Carla de Souza Della |
author_role |
author |
author2 |
Nunes, Ana Célia Silva, Flavia Calheiros da Santos, Emanuele Mariano de Souza Barba, Patricia Carla de Souza Della |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Silva, Emilly Carla Lima da Nunes, Ana Célia Silva, Flavia Calheiros da Santos, Emanuele Mariano de Souza Barba, Patricia Carla de Souza Della |
dc.subject.por.fl_str_mv |
Família Necessidade de apoio Deficiência Criança e adolescente Family Need support Deficiency Child and teenager Familia Necesidad de apoyo Deficiencia Niño y adolescente |
topic |
Família Necessidade de apoio Deficiência Criança e adolescente Family Need support Deficiency Child and teenager Familia Necesidad de apoyo Deficiencia Niño y adolescente |
description |
It becomes imperative for services that assist the family of people with disabilities to understand their family support needs. The objective of this work was to analyze the need of support directed to families of children and adolescents with disabilities in a specialized rehabilitation center in thest ate of Alagoas. This is a cross-sectional, descriptive and comparative study, with a quantitative approach. Forty user families were recruited, aged between 0 and 17 years, 11 months and 29 days. For data collection, the Family Needs Assessment Scale Protocol (ANF) was used. The data were tabulated in an electronic spreadsheet and analyzed statistically using Software R version 3.6.1. Among the participating family members, it was observed that the figure of the mother in care was recurrent, with 92.5% being primary caregivers. Most families needed intermediate support in the performance of basic tasks. Regarding the type of support that would be most useful for families, the results mentioned informational support as the one that would best meet the family's needs. Regarding the classification by factor of the ANF, it was found that the largest number of items indicating high need is found among the variables family life, free time and acquisition and management of products and services, as well as very high need in the area of education . The data demonstrate the need to propose strategies aimed at developing support networks to support the families of children and adolescents with disabilities, in solving their needs. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-10-05 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/66743 10.5902/1984686X66743 |
url |
http://periodicos.ufsm.br/educacaoespecial/article/view/66743 |
identifier_str_mv |
10.5902/1984686X66743 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/66743/61900 http://periodicos.ufsm.br/educacaoespecial/article/view/66743/61903 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2023 Revista Educação Especial https://creativecommons.org/licenses/by-nc/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2023 Revista Educação Especial https://creativecommons.org/licenses/by-nc/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf text/html |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
dc.source.none.fl_str_mv |
Special Education Magazine; Vol. 36 No. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28 Revista de Educación Especial; Vol. 36 Núm. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28 Revista Educação Especial; v. 36 n. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28 1984-686X reponame:Revista Educação Especial (UFSM) instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
instname_str |
Universidade Federal de Santa Maria (UFSM) |
instacron_str |
UFSM |
institution |
UFSM |
reponame_str |
Revista Educação Especial (UFSM) |
collection |
Revista Educação Especial (UFSM) |
repository.name.fl_str_mv |
Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
educacaoespecial@smail.ufsm.br||clenioberni@gmail.com |
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