Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas

Detalhes bibliográficos
Autor(a) principal: Silva, Emilly Carla Lima da
Data de Publicação: 2023
Outros Autores: Nunes, Ana Célia, Silva, Flavia Calheiros da, Santos, Emanuele Mariano de Souza, Barba, Patricia Carla de Souza Della
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Educação Especial (UFSM)
Texto Completo: http://periodicos.ufsm.br/educacaoespecial/article/view/66743
Resumo: It becomes imperative for services that assist the family of people with disabilities to understand their family support needs. The objective of this work was to analyze the need of support directed to families of children and adolescents with disabilities in a specialized rehabilitation center in thest ate of Alagoas. This is a cross-sectional, descriptive and comparative study, with a quantitative approach. Forty user families were recruited, aged between 0 and 17 years, 11 months and 29 days. For data collection, the Family Needs Assessment Scale Protocol (ANF) was used. The data were tabulated in an electronic spreadsheet and analyzed statistically using Software R version 3.6.1. Among the participating family members, it was observed that the figure of the mother in care was recurrent, with 92.5% being primary caregivers. Most families needed intermediate support in the performance of basic tasks. Regarding the type of support that would be most useful for families, the results mentioned informational support as the one that would best meet the family's needs. Regarding the classification by factor of the ANF, it was found that the largest number of items indicating high need is found among the variables family life, free time and acquisition and management of products and services, as well as very high need in the area of ​​education . The data demonstrate the need to propose strategies aimed at developing support networks to support the families of children and adolescents with disabilities, in solving their needs.
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spelling Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in AlagoasNecesidades de apoyo de Familias de niños y adolescentes con discapacidad en un centro especializado de rehabilitación en AlagoasNecessidades de Apoio de Famílias de crianças e adolescentes com deficiência de um Centro Especializado em Reabilitação de AlagoasFamíliaNecessidade de apoioDeficiênciaCriança e adolescenteFamilyNeed supportDeficiencyChild and teenagerFamiliaNecesidad de apoyoDeficienciaNiño y adolescenteIt becomes imperative for services that assist the family of people with disabilities to understand their family support needs. The objective of this work was to analyze the need of support directed to families of children and adolescents with disabilities in a specialized rehabilitation center in thest ate of Alagoas. This is a cross-sectional, descriptive and comparative study, with a quantitative approach. Forty user families were recruited, aged between 0 and 17 years, 11 months and 29 days. For data collection, the Family Needs Assessment Scale Protocol (ANF) was used. The data were tabulated in an electronic spreadsheet and analyzed statistically using Software R version 3.6.1. Among the participating family members, it was observed that the figure of the mother in care was recurrent, with 92.5% being primary caregivers. Most families needed intermediate support in the performance of basic tasks. Regarding the type of support that would be most useful for families, the results mentioned informational support as the one that would best meet the family's needs. Regarding the classification by factor of the ANF, it was found that the largest number of items indicating high need is found among the variables family life, free time and acquisition and management of products and services, as well as very high need in the area of ​​education . The data demonstrate the need to propose strategies aimed at developing support networks to support the families of children and adolescents with disabilities, in solving their needs.Se vuelve imperativo que los servicios que ayuden a la familia de las personas con discapacidades a comprender sus necesidades de apoyo familiar. El objetivo de este trabajo fue analizar las necesidades de apoyo dirigidas a familias de niños y adolescentes con discapacidad en un centro de rehabilitación especializado en el estado de Alagoas. Se trata de un estudio transversal, descriptivo y comparativo, con enfoque cuantitativo. Se reclutaron cuarenta familias usuarias, con edades comprendidas entre 0 y 17 años, 11 meses y 29 días. Para la recolección de datos se utilizó el Protocolo de Escala de Evaluación de Necesidades Familiares (ANF). Los datos se tabularon en una hoja de cálculo electrónica y se analizaron estadísticamente con el software R versión 3.6.1. Entre los familiares participantes, se observó que la figura de la madre a cargo fue recurrente, siendo el 92,5% cuidadoras primarias. La mayoría de las familias necesitaban un apoyo intermedio en el desempeño de tareas básicas. En cuanto al tipo de apoyo que sería de mayor utilidad para las familias, los resultados mencionaron el apoyo informativo como el que mejor respondería a las necesidades de la familia. En cuanto a la clasificación por factores de la ANF, se encontró que el mayor número de ítems indicativos de alta necesidad se encuentra entre las variables vida familiar, tiempo libre y adquisición y gestión de productos y servicios, así como muy alta necesidad en el área de educación. . Los datos demuestran la necesidad de proponer estrategias encaminadas a desarrollar redes de apoyo para apoyar a las familias de niños, niñas y adolescentes con discapacidad, en la solución de sus necesidades.Torna-se imperativo para os serviços que prestam assistência a família de pessoas com deficiência compreender as suas necessidades de apoio familiar. O objetivo deste trabalho foi analisar as necessidades de apoio dirigido a famílias de crianças e adolescentes com deficiência de um centro especializado em reabilitação do estado de Alagoas. Trata-se de um estudo transversal, descritivo, com abordagem quantitativa. Foram recrutadas 40 famílias de usuários com idade entre 0 e 17 anos, 11 meses e 29 dias. Para a coleta de dados foi utilizado o Protocolo da Escala de Avaliação das Necessidades da Família (ANF). Os dados foram tabulados em planilha eletrônica e analisados estatisticamente utilizando o Software R versão 3.6.1. Dentre os familiares participantes observou-se que a figura da mãe no cuidado era recorrente, sendo 92,5% cuidadores principais. A maioria das famílias apresentou necessidade de apoio intermediário no desempenho de tarefas básicas. Sobre o tipo de apoio que seria mais útil para as famílias os resultados mencionaram o apoio informativo como o que mais atenderia as necessidades da família. Em relação à classificação por fator da ANF, obteve-se que o maior número de itens indicando alta necessidade encontra-se entre a variável vida familiar, tempo livre e aquisição e gestão de produtos e serviços, tal como necessidade muito alta na área de educação. Os dados demonstram a necessidade de proposição de estratégias voltadas para desenvolvimento de redes de suporte para apoio as famílias das crianças e adolescentes com deficiência, na resolutividade de suas necessidades.Universidade Federal de Santa Maria2023-10-05info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/htmlhttp://periodicos.ufsm.br/educacaoespecial/article/view/6674310.5902/1984686X66743Special Education Magazine; Vol. 36 No. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28Revista de Educación Especial; Vol. 36 Núm. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28Revista Educação Especial; v. 36 n. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-281984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/66743/61900http://periodicos.ufsm.br/educacaoespecial/article/view/66743/61903Copyright (c) 2023 Revista Educação Especialhttps://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessSilva, Emilly Carla Lima daNunes, Ana CéliaSilva, Flavia Calheiros daSantos, Emanuele Mariano de SouzaBarba, Patricia Carla de Souza Della2023-12-11T13:02:51Zoai:ojs.pkp.sfu.ca:article/66743Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2023-12-11T13:02:51Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false
dc.title.none.fl_str_mv Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
Necesidades de apoyo de Familias de niños y adolescentes con discapacidad en un centro especializado de rehabilitación en Alagoas
Necessidades de Apoio de Famílias de crianças e adolescentes com deficiência de um Centro Especializado em Reabilitação de Alagoas
title Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
spellingShingle Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
Silva, Emilly Carla Lima da
Família
Necessidade de apoio
Deficiência
Criança e adolescente
Family
Need support
Deficiency
Child and teenager
Familia
Necesidad de apoyo
Deficiencia
Niño y adolescente
title_short Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
title_full Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
title_fullStr Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
title_full_unstemmed Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
title_sort Support Needs of Families of Children and Adolescents with Disabilities at a Specialized Rehabilitation Center in Alagoas
author Silva, Emilly Carla Lima da
author_facet Silva, Emilly Carla Lima da
Nunes, Ana Célia
Silva, Flavia Calheiros da
Santos, Emanuele Mariano de Souza
Barba, Patricia Carla de Souza Della
author_role author
author2 Nunes, Ana Célia
Silva, Flavia Calheiros da
Santos, Emanuele Mariano de Souza
Barba, Patricia Carla de Souza Della
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Silva, Emilly Carla Lima da
Nunes, Ana Célia
Silva, Flavia Calheiros da
Santos, Emanuele Mariano de Souza
Barba, Patricia Carla de Souza Della
dc.subject.por.fl_str_mv Família
Necessidade de apoio
Deficiência
Criança e adolescente
Family
Need support
Deficiency
Child and teenager
Familia
Necesidad de apoyo
Deficiencia
Niño y adolescente
topic Família
Necessidade de apoio
Deficiência
Criança e adolescente
Family
Need support
Deficiency
Child and teenager
Familia
Necesidad de apoyo
Deficiencia
Niño y adolescente
description It becomes imperative for services that assist the family of people with disabilities to understand their family support needs. The objective of this work was to analyze the need of support directed to families of children and adolescents with disabilities in a specialized rehabilitation center in thest ate of Alagoas. This is a cross-sectional, descriptive and comparative study, with a quantitative approach. Forty user families were recruited, aged between 0 and 17 years, 11 months and 29 days. For data collection, the Family Needs Assessment Scale Protocol (ANF) was used. The data were tabulated in an electronic spreadsheet and analyzed statistically using Software R version 3.6.1. Among the participating family members, it was observed that the figure of the mother in care was recurrent, with 92.5% being primary caregivers. Most families needed intermediate support in the performance of basic tasks. Regarding the type of support that would be most useful for families, the results mentioned informational support as the one that would best meet the family's needs. Regarding the classification by factor of the ANF, it was found that the largest number of items indicating high need is found among the variables family life, free time and acquisition and management of products and services, as well as very high need in the area of ​​education . The data demonstrate the need to propose strategies aimed at developing support networks to support the families of children and adolescents with disabilities, in solving their needs.
publishDate 2023
dc.date.none.fl_str_mv 2023-10-05
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufsm.br/educacaoespecial/article/view/66743
10.5902/1984686X66743
url http://periodicos.ufsm.br/educacaoespecial/article/view/66743
identifier_str_mv 10.5902/1984686X66743
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv http://periodicos.ufsm.br/educacaoespecial/article/view/66743/61900
http://periodicos.ufsm.br/educacaoespecial/article/view/66743/61903
dc.rights.driver.fl_str_mv Copyright (c) 2023 Revista Educação Especial
https://creativecommons.org/licenses/by-nc/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Revista Educação Especial
https://creativecommons.org/licenses/by-nc/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
text/html
dc.publisher.none.fl_str_mv Universidade Federal de Santa Maria
publisher.none.fl_str_mv Universidade Federal de Santa Maria
dc.source.none.fl_str_mv Special Education Magazine; Vol. 36 No. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28
Revista de Educación Especial; Vol. 36 Núm. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28
Revista Educação Especial; v. 36 n. 1 (2023): Revista Educação Especial – Publicação Contínua – Qualis – A2; e50/1-28
1984-686X
reponame:Revista Educação Especial (UFSM)
instname:Universidade Federal de Santa Maria (UFSM)
instacron:UFSM
instname_str Universidade Federal de Santa Maria (UFSM)
instacron_str UFSM
institution UFSM
reponame_str Revista Educação Especial (UFSM)
collection Revista Educação Especial (UFSM)
repository.name.fl_str_mv Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)
repository.mail.fl_str_mv educacaoespecial@smail.ufsm.br||clenioberni@gmail.com
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