Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , , , , , , , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Research, Society and Development |
Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/18500 |
Resumo: | This study aims to search the literature for activities performed by family caregivers to people with autism spectrum disorder, pointing out their main difficulties. And it is important to encourage research on this theme, emphasizing the action of caregivers at home. This is an integrative review study of a qualitative nature, the search was carried out in the following databases: Latin American and Caribbean Literature in Health Sciences (LILACS); ScientificElectronic Library Online (SciELO) and Nursing Database (BDENF). The articles were collected from June to July 2021. The descriptors were used: “Caregivers; Home Care and Autistic Spectrum Disorder”, selected from the list of Health Sciences Descriptors (DECs). Criteria for exclusion and inclusion in the study were selected, leaving a quantitative of 9 researches used. The main activity performed in the care of patients with ASD is the responsibility of caregivers, being mostly composed of mothers of patients, male caregivers, performing activities regarded as assistants, which generates a work overload for family caregivers. It is concluded that it is necessary to promote health to these caregivers, as it was clear during the construction of the study that this community still lacks information about the diagnosis and treatment of ASD. |
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Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.Papel de los cuidadores domiciliariosenlaatención de pacientes contrastornosdel espectro autista: Una revisión integradora.Papel do cuidador domiciliar na assistência ao paciente portador do transtorno do espectro autista: Uma revisão integrativa.CuidadoresAssistência domiciliarTranstorno do espectro autista.CuidadoresAtención domiciliariaTrastorno del espectro autista.CaregiversHome careAutistic spectrum disorder.This study aims to search the literature for activities performed by family caregivers to people with autism spectrum disorder, pointing out their main difficulties. And it is important to encourage research on this theme, emphasizing the action of caregivers at home. This is an integrative review study of a qualitative nature, the search was carried out in the following databases: Latin American and Caribbean Literature in Health Sciences (LILACS); ScientificElectronic Library Online (SciELO) and Nursing Database (BDENF). The articles were collected from June to July 2021. The descriptors were used: “Caregivers; Home Care and Autistic Spectrum Disorder”, selected from the list of Health Sciences Descriptors (DECs). Criteria for exclusion and inclusion in the study were selected, leaving a quantitative of 9 researches used. The main activity performed in the care of patients with ASD is the responsibility of caregivers, being mostly composed of mothers of patients, male caregivers, performing activities regarded as assistants, which generates a work overload for family caregivers. It is concluded that it is necessary to promote health to these caregivers, as it was clear during the construction of the study that this community still lacks information about the diagnosis and treatment of ASD.Este estudio tiene como objetivo buscar en la literatura las actividades que realizan los cuidadores familiares a personas con trastorno del espectro autista, señalando sus principales dificultades. Y es importante fomentar la investigación sobre este tema, haciendo hincapié en la acción de los cuidadores en el hogar. Se trata de un estudio de revisión integradora de carácter cualitativo, la búsqueda se realizó en las siguientes bases de datos: Literatura Latinoamericana y del Caribe en Ciencias de la Salud (LILACS); Biblioteca Electrónica Científica en Línea (SciELO) y Base de Datos de Enfermería (BDENF). Los artículos fueron recolectados de junio a julio de 2021. Se utilizaron los descriptores: “Cuidadores; Atención domiciliaria y trastorno del espectro autista”, seleccionado de la lista de descriptores de ciencias de la salud (DEC). Se seleccionaron los criterios de exclusión e inclusión en el estudio, y aún se utilizaron 9 investigaciones para la construcción del estudio. La principal actividad que se realiza en el cuidado de pacientes con TEA es responsabilidad de los cuidadores, estando mayoritariamente compuesta por madres de pacientes, cuidadores masculinos, realizando actividades consideradas como asistentes, lo que genera una sobrecarga de trabajo para los cuidadores familiares. Se concluye que es necesario promover la salud de estos cuidadores, pues quedó claro durante la construcción del estudio que esta comunidad aún carece de información sobre el diagnóstico y tratamiento de los TEA.Este estudo tem como objetivo buscar na literatura as atividades realizadas pelo cuidador familiar a pessoa portadora do transtorno do espectro autista, apontando as suas principais dificuldades. E tem a importância de estimular a pesquisa nessa temática, abordando com ênfase ação dos cuidadores no domicilio. Trata-se de um estudo do tipo revisão integrativa de caráter qualitativo, a busca ocorreu nas bases de dados: Literatura Latino-Americana e do Caribe em Ciências da Saúde (LILACS); ScientificElectronic Library Online (SciELO) e Base de Dados de Enfermagem (BDENF). Os artigos foram coletados nos períodos de junho a julho de 2021. Foram utilizados os descritores: “Cuidadores; Assistência Domiciliar e Transtorno do Espectro Autista”, selecionados na lista dos Descritores em Ciências da Saúde (DECs). Foram selecionados os critérios para exclusão e inclusão no estudo, e restaram um quantitativo de 9 pesquisas usadas. A principal atividade desempenhada no cuidado a pacientes com TEA, cabe a responsabilidade das cuidadoras, sendo em sua maioria compostas por mães de pacientes, os cuidadores do sexo masculino, desempenha atividades conceituadas como auxiliares, o que gera uma sobrecarga de trabalho as cuidadoras familiares. Conclui-se que é necessário promover saúde a esses cuidadores, pois ficou claro durante a construção do estudo, que essa comunidade ainda é carente de informações sobre o diagnóstico e tratamento de TEA.Research, Society and Development2021-08-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1850010.33448/rsd-v10i10.18500Research, Society and Development; Vol. 10 No. 10; e37101018500Research, Society and Development; Vol. 10 Núm. 10; e37101018500Research, Society and Development; v. 10 n. 10; e371010185002525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/18500/16560Copyright (c) 2021 Allan Bruno Alves de Sousa Santos; Débora de Oliveira Lima; Ana Carolina do Nascimento Simões da Silva; Kallyne dos Santos; Mikaelle Alves Silva; Paloma Vitória Menezes dos Santos; Carla Conrado Barbosa; Douglas Bento Chagas; Luíza Alves da Silva; Luciana Carneiro de Brito Ramalho; Bianca Barroso de Sousa; Leandro Barbosa Teixeira; Dalton Ferreira Matos; Lorrayne Valério de Sá; Valéria Fernandes da Silva Lima; Juliana da Silva Sousa; Maria Eduarda de Barros Pardelhas; Maria Helena de Lima Sousa; Maria Samara da Silva ; Gabriela Cristina Limp; Luani Akemi Furyama; Laiany Maiara Quirino de Paula ; Nair Arrais Leite; Elias Paulo da Silva; Islaila Maria Silva Ferreira; Gedelvani Francisco Oliveira da Silvahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSantos, Allan Bruno Alves de SousaLima, Débora de Oliveira Silva, Ana Carolina do Nascimento Simões daSantos, Kallyne dos Silva, Mikaelle Alves Santos, Paloma Vitória Menezes dos Barbosa, Carla Conrado Chagas, Douglas BentoSilva, Luíza Alves da Ramalho, Luciana Carneiro de Brito Sousa, Bianca Barroso de Teixeira, Leandro Barbosa Matos, Dalton Ferreira Sá, Lorrayne Valério de Lima, Valéria Fernandes da Silva Sousa, Juliana da SilvaPardelhas, Maria Eduarda de Barros Sousa, Maria Helena de Lima Silva , Maria Samara da Limp, Gabriela Cristina Furyama, Luani AkemiPaula , Laiany Maiara Quirino de Leite, Nair ArraisSilva, Elias Paulo da Ferreira, Islaila Maria Silva Silva, Gedelvani Francisco Oliveira da 2021-10-02T21:49:16Zoai:ojs.pkp.sfu.ca:article/18500Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:38:37.643264Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
dc.title.none.fl_str_mv |
Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review. Papel de los cuidadores domiciliariosenlaatención de pacientes contrastornosdel espectro autista: Una revisión integradora. Papel do cuidador domiciliar na assistência ao paciente portador do transtorno do espectro autista: Uma revisão integrativa. |
title |
Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review. |
spellingShingle |
Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review. Santos, Allan Bruno Alves de Sousa Cuidadores Assistência domiciliar Transtorno do espectro autista. Cuidadores Atención domiciliaria Trastorno del espectro autista. Caregivers Home care Autistic spectrum disorder. |
title_short |
Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review. |
title_full |
Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review. |
title_fullStr |
Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review. |
title_full_unstemmed |
Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review. |
title_sort |
Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review. |
author |
Santos, Allan Bruno Alves de Sousa |
author_facet |
Santos, Allan Bruno Alves de Sousa Lima, Débora de Oliveira Silva, Ana Carolina do Nascimento Simões da Santos, Kallyne dos Silva, Mikaelle Alves Santos, Paloma Vitória Menezes dos Barbosa, Carla Conrado Chagas, Douglas Bento Silva, Luíza Alves da Ramalho, Luciana Carneiro de Brito Sousa, Bianca Barroso de Teixeira, Leandro Barbosa Matos, Dalton Ferreira Sá, Lorrayne Valério de Lima, Valéria Fernandes da Silva Sousa, Juliana da Silva Pardelhas, Maria Eduarda de Barros Sousa, Maria Helena de Lima Silva , Maria Samara da Limp, Gabriela Cristina Furyama, Luani Akemi Paula , Laiany Maiara Quirino de Leite, Nair Arrais Silva, Elias Paulo da Ferreira, Islaila Maria Silva Silva, Gedelvani Francisco Oliveira da |
author_role |
author |
author2 |
Lima, Débora de Oliveira Silva, Ana Carolina do Nascimento Simões da Santos, Kallyne dos Silva, Mikaelle Alves Santos, Paloma Vitória Menezes dos Barbosa, Carla Conrado Chagas, Douglas Bento Silva, Luíza Alves da Ramalho, Luciana Carneiro de Brito Sousa, Bianca Barroso de Teixeira, Leandro Barbosa Matos, Dalton Ferreira Sá, Lorrayne Valério de Lima, Valéria Fernandes da Silva Sousa, Juliana da Silva Pardelhas, Maria Eduarda de Barros Sousa, Maria Helena de Lima Silva , Maria Samara da Limp, Gabriela Cristina Furyama, Luani Akemi Paula , Laiany Maiara Quirino de Leite, Nair Arrais Silva, Elias Paulo da Ferreira, Islaila Maria Silva Silva, Gedelvani Francisco Oliveira da |
author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author |
dc.contributor.author.fl_str_mv |
Santos, Allan Bruno Alves de Sousa Lima, Débora de Oliveira Silva, Ana Carolina do Nascimento Simões da Santos, Kallyne dos Silva, Mikaelle Alves Santos, Paloma Vitória Menezes dos Barbosa, Carla Conrado Chagas, Douglas Bento Silva, Luíza Alves da Ramalho, Luciana Carneiro de Brito Sousa, Bianca Barroso de Teixeira, Leandro Barbosa Matos, Dalton Ferreira Sá, Lorrayne Valério de Lima, Valéria Fernandes da Silva Sousa, Juliana da Silva Pardelhas, Maria Eduarda de Barros Sousa, Maria Helena de Lima Silva , Maria Samara da Limp, Gabriela Cristina Furyama, Luani Akemi Paula , Laiany Maiara Quirino de Leite, Nair Arrais Silva, Elias Paulo da Ferreira, Islaila Maria Silva Silva, Gedelvani Francisco Oliveira da |
dc.subject.por.fl_str_mv |
Cuidadores Assistência domiciliar Transtorno do espectro autista. Cuidadores Atención domiciliaria Trastorno del espectro autista. Caregivers Home care Autistic spectrum disorder. |
topic |
Cuidadores Assistência domiciliar Transtorno do espectro autista. Cuidadores Atención domiciliaria Trastorno del espectro autista. Caregivers Home care Autistic spectrum disorder. |
description |
This study aims to search the literature for activities performed by family caregivers to people with autism spectrum disorder, pointing out their main difficulties. And it is important to encourage research on this theme, emphasizing the action of caregivers at home. This is an integrative review study of a qualitative nature, the search was carried out in the following databases: Latin American and Caribbean Literature in Health Sciences (LILACS); ScientificElectronic Library Online (SciELO) and Nursing Database (BDENF). The articles were collected from June to July 2021. The descriptors were used: “Caregivers; Home Care and Autistic Spectrum Disorder”, selected from the list of Health Sciences Descriptors (DECs). Criteria for exclusion and inclusion in the study were selected, leaving a quantitative of 9 researches used. The main activity performed in the care of patients with ASD is the responsibility of caregivers, being mostly composed of mothers of patients, male caregivers, performing activities regarded as assistants, which generates a work overload for family caregivers. It is concluded that it is necessary to promote health to these caregivers, as it was clear during the construction of the study that this community still lacks information about the diagnosis and treatment of ASD. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-08-04 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/18500 10.33448/rsd-v10i10.18500 |
url |
https://rsdjournal.org/index.php/rsd/article/view/18500 |
identifier_str_mv |
10.33448/rsd-v10i10.18500 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/18500/16560 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Research, Society and Development |
publisher.none.fl_str_mv |
Research, Society and Development |
dc.source.none.fl_str_mv |
Research, Society and Development; Vol. 10 No. 10; e37101018500 Research, Society and Development; Vol. 10 Núm. 10; e37101018500 Research, Society and Development; v. 10 n. 10; e37101018500 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
instname_str |
Universidade Federal de Itajubá (UNIFEI) |
instacron_str |
UNIFEI |
institution |
UNIFEI |
reponame_str |
Research, Society and Development |
collection |
Research, Society and Development |
repository.name.fl_str_mv |
Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
repository.mail.fl_str_mv |
rsd.articles@gmail.com |
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1797052685177847808 |