Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.

Detalhes bibliográficos
Autor(a) principal: Santos, Allan Bruno Alves de Sousa
Data de Publicação: 2021
Outros Autores: Lima, Débora de Oliveira, Silva, Ana Carolina do Nascimento Simões da, Santos, Kallyne dos, Silva, Mikaelle Alves, Santos, Paloma Vitória Menezes dos, Barbosa, Carla Conrado, Chagas, Douglas Bento, Silva, Luíza Alves da, Ramalho, Luciana Carneiro de Brito, Sousa, Bianca Barroso de, Teixeira, Leandro Barbosa, Matos, Dalton Ferreira, Sá, Lorrayne Valério de, Lima, Valéria Fernandes da Silva, Sousa, Juliana da Silva, Pardelhas, Maria Eduarda de Barros, Sousa, Maria Helena de Lima, Silva , Maria Samara da, Limp, Gabriela Cristina, Furyama, Luani Akemi, Paula , Laiany Maiara Quirino de, Leite, Nair Arrais, Silva, Elias Paulo da, Ferreira, Islaila Maria Silva, Silva, Gedelvani Francisco Oliveira da
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/18500
Resumo: This study aims to search the literature for activities performed by family caregivers to people with autism spectrum disorder, pointing out their main difficulties. And it is important to encourage research on this theme, emphasizing the action of caregivers at home. This is an integrative review study of a qualitative nature, the search was carried out in the following databases: Latin American and Caribbean Literature in Health Sciences (LILACS); ScientificElectronic Library Online (SciELO) and Nursing Database (BDENF). The articles were collected from June to July 2021. The descriptors were used: “Caregivers; Home Care and Autistic Spectrum Disorder”, selected from the list of Health Sciences Descriptors (DECs). Criteria for exclusion and inclusion in the study were selected, leaving a quantitative of 9 researches used. The main activity performed in the care of patients with ASD is the responsibility of caregivers, being mostly composed of mothers of patients, male caregivers, performing activities regarded as assistants, which generates a work overload for family caregivers. It is concluded that it is necessary to promote health to these caregivers, as it was clear during the construction of the study that this community still lacks information about the diagnosis and treatment of ASD.
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spelling Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.Papel de los cuidadores domiciliariosenlaatención de pacientes contrastornosdel espectro autista: Una revisión integradora.Papel do cuidador domiciliar na assistência ao paciente portador do transtorno do espectro autista: Uma revisão integrativa.CuidadoresAssistência domiciliarTranstorno do espectro autista.CuidadoresAtención domiciliariaTrastorno del espectro autista.CaregiversHome careAutistic spectrum disorder.This study aims to search the literature for activities performed by family caregivers to people with autism spectrum disorder, pointing out their main difficulties. And it is important to encourage research on this theme, emphasizing the action of caregivers at home. This is an integrative review study of a qualitative nature, the search was carried out in the following databases: Latin American and Caribbean Literature in Health Sciences (LILACS); ScientificElectronic Library Online (SciELO) and Nursing Database (BDENF). The articles were collected from June to July 2021. The descriptors were used: “Caregivers; Home Care and Autistic Spectrum Disorder”, selected from the list of Health Sciences Descriptors (DECs). Criteria for exclusion and inclusion in the study were selected, leaving a quantitative of 9 researches used. The main activity performed in the care of patients with ASD is the responsibility of caregivers, being mostly composed of mothers of patients, male caregivers, performing activities regarded as assistants, which generates a work overload for family caregivers. It is concluded that it is necessary to promote health to these caregivers, as it was clear during the construction of the study that this community still lacks information about the diagnosis and treatment of ASD.Este estudio tiene como objetivo buscar en la literatura las actividades que realizan los cuidadores familiares a personas con trastorno del espectro autista, señalando sus principales dificultades. Y es importante fomentar la investigación sobre este tema, haciendo hincapié en la acción de los cuidadores en el hogar. Se trata de un estudio de revisión integradora de carácter cualitativo, la búsqueda se realizó en las siguientes bases de datos: Literatura Latinoamericana y del Caribe en Ciencias de la Salud (LILACS); Biblioteca Electrónica Científica en Línea (SciELO) y Base de Datos de Enfermería (BDENF). Los artículos fueron recolectados de junio a julio de 2021. Se utilizaron los descriptores: “Cuidadores; Atención domiciliaria y trastorno del espectro autista”, seleccionado de la lista de descriptores de ciencias de la salud (DEC). Se seleccionaron los criterios de exclusión e inclusión en el estudio, y aún se utilizaron 9 investigaciones para la construcción del estudio. La principal actividad que se realiza en el cuidado de pacientes con TEA es responsabilidad de los cuidadores, estando mayoritariamente compuesta por madres de pacientes, cuidadores masculinos, realizando actividades consideradas como asistentes, lo que genera una sobrecarga de trabajo para los cuidadores familiares. Se concluye que es necesario promover la salud de estos cuidadores, pues quedó claro durante la construcción del estudio que esta comunidad aún carece de información sobre el diagnóstico y tratamiento de los TEA.Este estudo tem como objetivo buscar na literatura as atividades realizadas pelo cuidador familiar a pessoa portadora do transtorno do espectro autista, apontando as suas principais dificuldades. E tem a importância de estimular a pesquisa nessa temática, abordando com ênfase ação dos cuidadores no domicilio. Trata-se de um estudo do tipo revisão integrativa de caráter qualitativo, a busca ocorreu nas bases de dados: Literatura Latino-Americana e do Caribe em Ciências da Saúde (LILACS); ScientificElectronic Library Online (SciELO) e Base de Dados de Enfermagem (BDENF). Os artigos foram coletados nos períodos de junho a julho de 2021. Foram utilizados os descritores: “Cuidadores; Assistência Domiciliar e Transtorno do Espectro Autista”, selecionados na lista dos Descritores em Ciências da Saúde (DECs). Foram selecionados os critérios para exclusão e inclusão no estudo, e restaram um quantitativo de 9 pesquisas usadas. A principal atividade desempenhada no cuidado a pacientes com TEA, cabe a responsabilidade das cuidadoras, sendo em sua maioria compostas por mães de pacientes, os cuidadores do sexo masculino, desempenha atividades conceituadas como auxiliares, o que gera uma sobrecarga de trabalho as cuidadoras familiares. Conclui-se que é necessário promover saúde a esses cuidadores, pois ficou claro durante a construção do estudo, que essa comunidade ainda é carente de informações sobre o diagnóstico e tratamento de TEA.Research, Society and Development2021-08-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1850010.33448/rsd-v10i10.18500Research, Society and Development; Vol. 10 No. 10; e37101018500Research, Society and Development; Vol. 10 Núm. 10; e37101018500Research, Society and Development; v. 10 n. 10; e371010185002525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/18500/16560Copyright (c) 2021 Allan Bruno Alves de Sousa Santos; Débora de Oliveira Lima; Ana Carolina do Nascimento Simões da Silva; Kallyne dos Santos; Mikaelle Alves Silva; Paloma Vitória Menezes dos Santos; Carla Conrado Barbosa; Douglas Bento Chagas; Luíza Alves da Silva; Luciana Carneiro de Brito Ramalho; Bianca Barroso de Sousa; Leandro Barbosa Teixeira; Dalton Ferreira Matos; Lorrayne Valério de Sá; Valéria Fernandes da Silva Lima; Juliana da Silva Sousa; Maria Eduarda de Barros Pardelhas; Maria Helena de Lima Sousa; Maria Samara da Silva ; Gabriela Cristina Limp; Luani Akemi Furyama; Laiany Maiara Quirino de Paula ; Nair Arrais Leite; Elias Paulo da Silva; Islaila Maria Silva Ferreira; Gedelvani Francisco Oliveira da Silvahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSantos, Allan Bruno Alves de SousaLima, Débora de Oliveira Silva, Ana Carolina do Nascimento Simões daSantos, Kallyne dos Silva, Mikaelle Alves Santos, Paloma Vitória Menezes dos Barbosa, Carla Conrado Chagas, Douglas BentoSilva, Luíza Alves da Ramalho, Luciana Carneiro de Brito Sousa, Bianca Barroso de Teixeira, Leandro Barbosa Matos, Dalton Ferreira Sá, Lorrayne Valério de Lima, Valéria Fernandes da Silva Sousa, Juliana da SilvaPardelhas, Maria Eduarda de Barros Sousa, Maria Helena de Lima Silva , Maria Samara da Limp, Gabriela Cristina Furyama, Luani AkemiPaula , Laiany Maiara Quirino de Leite, Nair ArraisSilva, Elias Paulo da Ferreira, Islaila Maria Silva Silva, Gedelvani Francisco Oliveira da 2021-10-02T21:49:16Zoai:ojs.pkp.sfu.ca:article/18500Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:38:37.643264Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
Papel de los cuidadores domiciliariosenlaatención de pacientes contrastornosdel espectro autista: Una revisión integradora.
Papel do cuidador domiciliar na assistência ao paciente portador do transtorno do espectro autista: Uma revisão integrativa.
title Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
spellingShingle Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
Santos, Allan Bruno Alves de Sousa
Cuidadores
Assistência domiciliar
Transtorno do espectro autista.
Cuidadores
Atención domiciliaria
Trastorno del espectro autista.
Caregivers
Home care
Autistic spectrum disorder.
title_short Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
title_full Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
title_fullStr Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
title_full_unstemmed Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
title_sort Role of home caregivers in assisting patients with autism spectrum disorder: An integrative review.
author Santos, Allan Bruno Alves de Sousa
author_facet Santos, Allan Bruno Alves de Sousa
Lima, Débora de Oliveira
Silva, Ana Carolina do Nascimento Simões da
Santos, Kallyne dos
Silva, Mikaelle Alves
Santos, Paloma Vitória Menezes dos
Barbosa, Carla Conrado
Chagas, Douglas Bento
Silva, Luíza Alves da
Ramalho, Luciana Carneiro de Brito
Sousa, Bianca Barroso de
Teixeira, Leandro Barbosa
Matos, Dalton Ferreira
Sá, Lorrayne Valério de
Lima, Valéria Fernandes da Silva
Sousa, Juliana da Silva
Pardelhas, Maria Eduarda de Barros
Sousa, Maria Helena de Lima
Silva , Maria Samara da
Limp, Gabriela Cristina
Furyama, Luani Akemi
Paula , Laiany Maiara Quirino de
Leite, Nair Arrais
Silva, Elias Paulo da
Ferreira, Islaila Maria Silva
Silva, Gedelvani Francisco Oliveira da
author_role author
author2 Lima, Débora de Oliveira
Silva, Ana Carolina do Nascimento Simões da
Santos, Kallyne dos
Silva, Mikaelle Alves
Santos, Paloma Vitória Menezes dos
Barbosa, Carla Conrado
Chagas, Douglas Bento
Silva, Luíza Alves da
Ramalho, Luciana Carneiro de Brito
Sousa, Bianca Barroso de
Teixeira, Leandro Barbosa
Matos, Dalton Ferreira
Sá, Lorrayne Valério de
Lima, Valéria Fernandes da Silva
Sousa, Juliana da Silva
Pardelhas, Maria Eduarda de Barros
Sousa, Maria Helena de Lima
Silva , Maria Samara da
Limp, Gabriela Cristina
Furyama, Luani Akemi
Paula , Laiany Maiara Quirino de
Leite, Nair Arrais
Silva, Elias Paulo da
Ferreira, Islaila Maria Silva
Silva, Gedelvani Francisco Oliveira da
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
dc.contributor.author.fl_str_mv Santos, Allan Bruno Alves de Sousa
Lima, Débora de Oliveira
Silva, Ana Carolina do Nascimento Simões da
Santos, Kallyne dos
Silva, Mikaelle Alves
Santos, Paloma Vitória Menezes dos
Barbosa, Carla Conrado
Chagas, Douglas Bento
Silva, Luíza Alves da
Ramalho, Luciana Carneiro de Brito
Sousa, Bianca Barroso de
Teixeira, Leandro Barbosa
Matos, Dalton Ferreira
Sá, Lorrayne Valério de
Lima, Valéria Fernandes da Silva
Sousa, Juliana da Silva
Pardelhas, Maria Eduarda de Barros
Sousa, Maria Helena de Lima
Silva , Maria Samara da
Limp, Gabriela Cristina
Furyama, Luani Akemi
Paula , Laiany Maiara Quirino de
Leite, Nair Arrais
Silva, Elias Paulo da
Ferreira, Islaila Maria Silva
Silva, Gedelvani Francisco Oliveira da
dc.subject.por.fl_str_mv Cuidadores
Assistência domiciliar
Transtorno do espectro autista.
Cuidadores
Atención domiciliaria
Trastorno del espectro autista.
Caregivers
Home care
Autistic spectrum disorder.
topic Cuidadores
Assistência domiciliar
Transtorno do espectro autista.
Cuidadores
Atención domiciliaria
Trastorno del espectro autista.
Caregivers
Home care
Autistic spectrum disorder.
description This study aims to search the literature for activities performed by family caregivers to people with autism spectrum disorder, pointing out their main difficulties. And it is important to encourage research on this theme, emphasizing the action of caregivers at home. This is an integrative review study of a qualitative nature, the search was carried out in the following databases: Latin American and Caribbean Literature in Health Sciences (LILACS); ScientificElectronic Library Online (SciELO) and Nursing Database (BDENF). The articles were collected from June to July 2021. The descriptors were used: “Caregivers; Home Care and Autistic Spectrum Disorder”, selected from the list of Health Sciences Descriptors (DECs). Criteria for exclusion and inclusion in the study were selected, leaving a quantitative of 9 researches used. The main activity performed in the care of patients with ASD is the responsibility of caregivers, being mostly composed of mothers of patients, male caregivers, performing activities regarded as assistants, which generates a work overload for family caregivers. It is concluded that it is necessary to promote health to these caregivers, as it was clear during the construction of the study that this community still lacks information about the diagnosis and treatment of ASD.
publishDate 2021
dc.date.none.fl_str_mv 2021-08-04
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/18500
10.33448/rsd-v10i10.18500
url https://rsdjournal.org/index.php/rsd/article/view/18500
identifier_str_mv 10.33448/rsd-v10i10.18500
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/18500/16560
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 10 No. 10; e37101018500
Research, Society and Development; Vol. 10 Núm. 10; e37101018500
Research, Society and Development; v. 10 n. 10; e37101018500
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
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institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
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